Darlene Piraino, OTD, OTR/L
Mentor: Norene Carlson, OTD, OTR/L
Despite the prevalence of opposite-gender informal caregiving at end-of-life there is a paucity of research into this topic. The purpose of this study is to understand the experience of these caregivers, advance knowledge, and help inform future occupational therapy practice.
This qualitative phenomenological study utilized semi-structured interviewing techniques to explore informal end-of-life opposite-gender care experiences of eight caregivers. The interview transcripts were analyzed using the In Vivo, emotional, and thematic coding.
The study revealed that EOL caregiving tasks, especially those crossing gender boundaries, posed unique challenges in maintaining dignity and modesty, impacting caregivers and care recipients. The caregiver's gender was shown to significantly influence caregiving roles, routines, and experiences. Four main themes and six subthemes were identified. These themes were role conflict, with subthemes gender expectations, impact on other roles, and impact on communication; routine, with subthemes time demands, gender demands, and establishing routines; dignity; and modesty.
Findings demonstrate the intricate dynamics of opposite-gender caregiving at the EOL, highlighting the need for a nuanced understanding and approach in caregiving support. Occupational therapists can use their unique knowledge and expertise to play a pivotal role in addressing the needs of these caregivers.